Tag Archives: ALS

Review: In ‘MY NAME IS EMILY’ Evanna Lynch leaves Hogwarts behind.

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Monument Releasing

Presents

 MY NAME IS EMILY

 A Film By

Simon Fitzmaurice

Opening Theatrically In US Cities On February 17

VOD To Release On February 24

MY NAME IS EMILY, the debut-feature written and directed by the amazing Simon Fitzmaurice, is a life-enhancing story starring Evanna Lynch (Harry Potter), Michael Smiley (The Lobster, Kill List) and newcomer George Webster (City of Dreamers, Blood Moon).

After her mother dies and her visionary writer father is institutionalized, Emily is placed in a foster home and a new school where she is ostracized. On her 16th birthday, when her father’s annual card fails to arrive, Emily knows something’s wrong. Enlisting Arden, her only friend at school, she sets off on a road trip adventure across Ireland to find her missing Dad and break him out of the psych ward. They are an odd couple, this pale girl and the boy in the velvet suit, and along the way, they both come to realize important truths about the nature of relationships, both to their parents and to each other. MY NAME IS EMILY is a story of madness, sadness and love.

In  2008, director Simon Fitzmaurice was diagnosed with Motor Neuron Disease (ALS). Now completely paralyzed, Fitzmaurice typed the script for the film, through the movement of his eyes and iris recognition software, Eye Gaze. This is also how he communicated with cast and crew during the film’s six-week shoot. Given four years to live, Simon credits writing and filmmaking with having saved his life.My Name is Emily is a stunning coming of age film. Evanna Lynch shines in this complex role of a sad and brilliant young lady. The layers of this character come from the outstanding script from writer/director Fitzmaurice. Infusing philosophy, literature, poetry, loss and teenaged angst all intertwined into a story of finding oneself through letting go and letting people in. Michael Smiley is as wonderful as he’s ever been, touching the cornerstone of every possible emotion. George Webster, in particular, is one hell of a find. His natural ability to draw you in is reminiscent of the late Anton Yelchin. He will seduce you with his awkwardness and charm the pants off you all in the same scene. The honest chemistry between Lynch and Webster makes this film what it is. Another high note (pun not intended) is the glorious soundtrack. Each song evokes a familiarity that seems to fit perfectly into the moment. With a cool mix of voiceover moments and flashbacks, My Name is Emily is a true delight.

 

Review: ‘TRANSFATTY LIVES’ makes living for something, everything.

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Presents
Transfatty Lives posterSo many of us participated in “The Ice Bucket Challenge”. The real question is, how many of us took 60 seconds to Google why we were doing it? Patrick Sean O’Brien‘s inspirational documentary TRANSFATTY LIVES paints a stunning, incredibly raw picture of ALS.
TransFatty_Press_1 Tribeca

At 30, Patrick Sean O’Brien was TransFatty, a New York City DJ, Internet personality, and filmmaker. He spent his days as a beer-drinking creative force, making art films about perverts, vulnerable souls, and Howard Johnson’s restaurants. Then his legs started shaking.

Defying sentimentality, TRANSFATTY LIVES takes you on an emotional roller coaster from Patrick’s wild, fun-loving days into the dark heart of ALS (a.k.a. Lou Gehrig’s disease). Given 2 to 5 years to live, Patrick first loses his ability to walk, then move his arms, then to swallow, and even to breathe. With the support of his bewildered friends and family Patrick braves the unthinkable and turns his camera onto himself.

As the director and star of his own documentary, Patrick films every step of his debilitating journey from first diagnosis through his current paralysis. Forcefully lacking self pity, he captures the emotion, humor, and absurdity of real life as he makes art, gets political, falls in love, fathers a son, and fights extreme depression and paranoia.

At 40, Patrick has completed this film by typing directions to his editors with the movements of his pupils. Miraculously, TRANSFATTY LIVES is not a movie about death. Because, while Patrick’s brain stopped being able to control his muscles, it remains brilliantly alive, allowing him to ask: “What if my diminishing physical abilities can be inversely proportional to my journey inward? And, more importantly, “will there be bacon and unicorns once I get there?”

Still 3 - TransFatty LivesPatrick’s film is moving, impactful, and funny. Narrated by Patrick, mostly through voice-to-text on his computer via eye movements, the structure of the film is high impact with footage from his previous quirky films, photographs of his adventures, and dairy entries starting from 2005, when he was diagnosed with ALS. Completely unafraid, what began as a film about Patrick’s love for Howard Johnson, soon becomes a film about his journey. His crew seem to become a huge part in his care-taking. Along with his family, they are totally immersed in Patrick’s world, as much as someone without ALS can possibly be. If you’re not crying half way through this doc, you may not actually have a soul. Patrick has created a lens through which the audience can begin to understand just how quickly this disease sucks the life out of you physically. Having Patrick as the center of this project is invaluable. Firstly, he’s intensely charming. Using humor and positivity, he is able to put us at ease. But, moments of extraordinary challenge break the surface at every turn, throwing reality back into our faces just as quickly. The film’s balance is sheer perfection. TRANSFATTY LIVES should be seriously considered as awards season ramps up in the coming weeks. Patrick Sean O’Brien is a brilliant filmmaker and one hell of a human being.

TRANSFATTY LIVES is opening in Los Angeles and On Demand on November 20th and in New York on December 25th.
 TRANSFATTY LIVES won the ‘Audience Award’ at The Tribeca Film Festival, Milano Film Festival, and American Film Festival in Poland. It was also a Top 20 Film at HotDocs International Film Festival.